Published: 10/02/2013 - Updated: 11/05/2018
To ensure early diagnosis and treatment as early as possible, specialists in Madrid presented the White Paper on Celiac Disease. The main idea is to promote awareness of celiac disease with a pioneering book in Spain. In this way, is to improve awareness of this disease to health professionals and society in general. The publication was presented in late April by the Vice-Minister of ealth Planning and Infrastructure, Belén Prado.
Features of the white paper
- The book was coordinated by the Chief of Pediatric Gastroenterology and Nutrition at the Hospital La Paz and Professor of Pediatrics at the Autonomous University of Madrid, Isabel Polanco Allué, which has involved the Ministry of Health.
- Was written by 26 authors and recognized experts on celiac disease and promoted by the Ministry of Health.
- This book addresses all the key aspects of celiac disease, the diagnostic protocols and knowledge of populations at risk of it.
- The chapters relating to the quality of life and celiac disease, the school menu, the gluten-free diet in all contexts and situation of celiac disease in Spain are analyzed in depth by the special social significance for them.
In future, Madrid plans to present data from a rigorous epidemiological study is being conducted to determine the prevalence of celiac disease in the region. This initiative will provide better information on the number of cases in our environment and the proportion of those affected will never be able to diagnose even suffer severe problems for current and future health.
It will also allow to adapt the health care resources to improve their early diagnosis and better care for patients diagnosed with it.
About Celiac Disease
Celiac disease (CD) is a permanent intolerance to gluten proteins (part of wheat, barley, oats and rye) in genetically predisposed individuals and that is accompanied by atrophy (destruction) of severe small bowel mucosa, which favors the poor absorption of nutrients.
Chronic intestinal disease is more prevalent, an estimated 1 in 100 people will suffer. It is expected that celiac disease is underdiagnosed and that only 10% of celiacs are diagnosed. If not recognized early, in adulthood, may occur in some cases, serious illnesses. The treatment is to remove the cereals from the diet containing gluten.
The importance of prevention
In Madrid, health centers have since 2006 with the Protocol for secondary prevention of celiac disease, which enhances the early diagnosis of this disease. Thanks to this protocol all family physicians and pediatricians with guidelines for submission of serological markers (determined by a blood test) to the suspicion that a patient suffering from Celiac sprue or if it is a risk group.
In addition, the Directorate General of Primary Health Care, through the Division of Health Promotion and Prevention, conducts various courses of action in self care of this disease. In this sense, it works with the Association of celiac Madrid editing materials, and soon will be edited copies of “Eating gluten free” and “What is celiac disease”.
Furthermore, the Service of Gastroenterology and Nutrition Children’s Hospital La Paz has been a pioneer in the diagnosis and treatment of celiac disease, developing different strands of research at national and international levels aimed at improvements in care for people celiac.
In the center of Madrid is tracking more than a thousand celiac disease is considered a national reference center in this area. To do so, offers a comprehensive treatment to the patient that includes the diagnosis, genetic and immunological studies, monitoring and psychological support.
Celiac disease may be associated with other chronic disorders like diabetes, epilepsy or dermatitis herpetiformis. The latter is a skin rash that appears in the chronic, characterized by groups of vesicles, papules and lesions similar to hives. Patients with this skin problem, very often have a severe injury of the intestinal mucosa similar to that of the celiac, and respond successfully to the removal of gluten from the diet, so in both cases the treatment should be the same one of this protein-free diet for life.
A celiac patient may lead a normal life. While suffering from this disease appears to involve a number of limitations, once diagnosed and properly treated, becomes a problem that interferes with the quality of life. The parent of a celiac child should not prohibit assistance to parties, birthdays or camps, but they warn the adults responsible for the illness suffered by the small and the controls should remain in the diet.